So I cannot eat anymore. I gag due to swelling and general soreness in my mouth and throat. No mucosistis yet which is a blessing.
Normally a naso-gastric tube is stuffed up your nose and down the back of the throat and food is administered via this. I tried to get that nasty pipe in three times but aside from lots of gagging I could not swallow it. I now get my food via IV. I am still able to drink sustagen etc which keeps my stomach and bowels active.
I also have been having bad stomach pain, much like heartburn only much worse. Some oxycodon provided relief and it might now be settling down.
I also slept for about 16 hours last night and today. I was totally exhausted from lack of sleep over the last week or so.
Trevor&Lorna
hi ya phill we are always thinking of you , keep at it mate …. how do we get on your blog.. T