Month: February 2015

Here being hospital. I will be leaving hospital on sunday 1st of March.

All meds are now taken orally. Might even be out by Monday. This was inconceivable only 7 days ago.
Now someone buy me of these to celebrate (make sure it has the glass panoramic roof for front and rear). The P85D will do.
Tesla Motors Model S

Fentanyl (see Wikipedia)
Anaesthetists choice too if I remember correctly from past court cases.

The endoscopy biopsy discovered GVHD (refer to Wikipedia for the deets). So now they now what is causing all the trouble.
Prednisone (a steroid) will fix all GVHD problems apparently. So my diarrhoea, skin rash, temperatures, lethargy, red eyes etc should see some return to some shade of normality over the next 5 days.
What a relief. It was very hard work maintaining some form of sanity through the last 4 weeks.

38 degrees. Also have a cold sore on my lip and an ulcer inside my mouth. Feeling OK though.

So far no temperature spikes and no mucositis.
Who knows, I may be out of here at the end of the week.

Had constant nausea the last week. Took a little while to find the right antiemetics. Feeling OK now. Nothing much else happening, just waiting.
Will update when something happens.

Every time I eat I get a gut ache, my stomach bloats up and I feel sick. The feed bag does not do this so I will see if they can feed me through my nose from now on.

Had them this morning through my PICC line. It is defrosted in a water bath and then it goes straight into me. Nothing else to report as it was uneventful. Obviously it is a big event but it does not do anything obvious for a few weeks.

Stem cells tomorrow.

In after some gagging. A good thing too as my appetite has gone.

Done. A half a dozen shots of local anaesthetic in my lower back, a needle into my spine, tap off a few drops of spinal fluid followed by an injection of chemo into the same hole. I then had to lie on my back for a couple of hours.
The local didn’t sting much. The only little discomfort was caused by hitting a nerve when the needle went into my spine. I felt a nerve twinge in my leg and right bottom. No after effects though so not too bad.